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Related Experiment Videos

Update on functional assessment tools.

C M Duffy1, L Tucker, R Burgos-Vargas

  • 1Division of Rheumatology, Montreal Children's Hospital, Quebec, Canada. ciaran.duffy@muhc.mcgill.ca

The Journal of Rheumatology. Supplement
|April 27, 2000
PubMed
Summary
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Pediatric rheumatic disease research has seen growth in health status and quality of life measures. Adapting these instruments for international use presents unique challenges.

Area of Science:

  • Rheumatology
  • Pediatrics
  • Health Outcomes Research

Background:

  • Significant advancements in health status and quality of life measurement tools for adults with rheumatic diseases.
  • A parallel development in pediatric rheumatic disease assessment tools over the last decade.
  • Introduction of specific instruments like CHAIMS, CHAQ, JAFAR, JASI, JAQQ, and CAHP for pediatric populations.

Purpose of the Study:

  • To review measurement instruments for health status, functional status, disability, and quality of life in children with rheumatic diseases.
  • To specifically discuss instruments assessing health-related quality of life (HRQOL): Juvenile Arthritis Quality of Life Questionnaire (JAQQ) and Childhood Arthritis Health Profile (CAHP).
  • To explore the complexities and challenges of adapting these instruments for international use.

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Main Methods:

  • Literature review of pediatric rheumatic disease measurement instruments.
  • Focus on instruments measuring health-related quality of life (HRQOL).
  • Discussion of the implications of international adaptation.

Main Results:

  • Several validated instruments now exist for assessing pediatric rheumatic disease impact.
  • The JAQQ and CAHP are highlighted for their focus on HRQOL.
  • The need for international adaptation introduces significant methodological and cultural considerations.

Conclusions:

  • The field has progressed in developing pediatric-specific rheumatic disease assessment tools.
  • Health-related quality of life is a key outcome measure in pediatric rheumatology.
  • International adaptation of these instruments requires careful consideration of diverse contexts.