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GRAPPA Patient Research Partner Network: Update to the GRAPPA 2020 Annual Meeting
Denis P O'Sullivan1, Ingrid Steinkoenig2
1D.P. O'Sullivan, BE, Our Lady's Hospice & Care Services, Rheumatic & Musculoskeletal Disease Unit, Dublin, Ireland; denis_osullivan@ymail.com.
The Journal of Rheumatology. Supplement
|June 2, 2021
Summary
Patient research partners actively contributed to the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA) 2020 meeting. They participated in discussions about coronavirus disease 2019 (COVID-19) and other key research initiatives.
Area of Science:
- Rheumatology
- Patient-Centered Research
- Public Health
Background:
- Patient research partners (PRPs) are integral to the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA).
- The GRAPPA 2020 Annual Meeting convened virtually due to the global pandemic.
- PRPs have a history of engagement in various GRAPPA research endeavors.
Purpose of the Study:
- To highlight the full participation of PRPs in the GRAPPA 2020 Annual Meeting.
- To emphasize the involvement of PRPs in critical discussions, including those on coronavirus disease 2019 (COVID-19).
- To showcase the ongoing contributions of PRPs to major GRAPPA projects.
Main Methods:
- Eleven PRPs attended the virtual GRAPPA 2020 Annual Meeting.
- PRPs actively participated in a panel discussion focused on COVID-19.
- PRPs contributed to ongoing GRAPPA initiatives throughout the year.
Main Results:
- PRPs demonstrated full engagement in the 2020 GRAPPA Annual Meeting.
- The panel discussion on COVID-19 benefited from direct PRP input.
- PRPs were involved in core set development, treatment guideline updates, and collaborative research networks.
Conclusions:
- Patient research partners are essential collaborators in rheumatology research.
- PRP involvement enhances the relevance and impact of GRAPPA's research agenda.
- Continued PRP engagement is vital for advancing psoriasis and psoriatic arthritis research, especially in the context of global health challenges like COVID-19.
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