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GRAPPA 2022 Patient Research Partners Network Update: Managing Growth
Ingrid Steinkoenig1, Niti Goel2, Arnon Katz3
1I. Steinkoenig, BA, Patient Research Partner, Cleveland Clinic, Cleveland, Ohio, USA; ingstein@gmail.com.
Seven patient research partners (PRPs) attended the 2022 Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA) meeting. The GRAPPA PRP Network continues its commitment to patient-centered research in psoriatic disease.
Area of Science:
- Rheumatology
- Patient-Centered Research
- Dermatology
Background:
- The Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA) convened its 2022 annual meeting.
- This marked the first in-person gathering since the onset of the coronavirus disease 2019 (COVID-19) pandemic.
- Patient research partners (PRPs) are integral to the GRAPPA initiative.
Purpose of the Study:
- To summarize the activities of the GRAPPA Patient Research Partner (PRP) Network.
- To highlight the continued engagement of PRPs in advancing GRAPPA's mission.
- To document the participation of PRPs in the 2022 GRAPPA annual meeting.
Main Methods:
- Attendance of seven PRPs at the 2022 GRAPPA annual meeting.
- Review of ongoing activities within the GRAPPA PRP Network.
- Reporting on the commitment of PRPs to patient-centered research.
Main Results:
- Seven PRPs actively participated in the 2022 GRAPPA annual meeting.
- The GRAPPA PRP Network demonstrated sustained engagement and commitment.
- The network continues to provide valuable patient perspectives to support GRAPPA's objectives.
Conclusions:
- The GRAPPA PRP Network remains a vital component of the GRAPPA initiative.
- In-person meetings facilitate robust collaboration between researchers and patient partners.
- Continued PRP involvement is crucial for patient-centered advancements in psoriatic disease research.
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