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Establishment of a Clinic-based Biorepository
Published on: May 29, 2017
A bioethics education program in pediatric rheumatology
1Department of Bioethics, The Hospital for Sick Children and the University of Toronto, Ontario, Canada. christine.harrison@sickkids.on.ca
Insights
Pediatric rheumatology care presents ethical complexities for healthcare teams. A specialized Bioethics Education Program was developed to enhance ethical reasoning and knowledge in managing complex pediatric patient cases.
Area of Science:
- Medical Ethics
- Pediatric Rheumatology
- Healthcare Education
Background:
- Pediatric rheumatology patient care involves complex ethical considerations.
- Healthcare professionals require ethical sensitivity, knowledge, and reasoning skills.
- Existing educational programs may not adequately address these specific needs.
Purpose of the Study:
- To develop and implement a tailored Bioethics Education Program for pediatric rheumatology healthcare teams.
- To enhance the ethical competence of medical trainees and multidisciplinary staff.
- To address the unique ethical challenges in pediatric rheumatology.
Main Methods:
- Collaborative development between Bioethics and Rheumatology departments.
- Creation of a curriculum focused on pediatric rheumatology ethics.
- Implementation of quarterly, case-based, interdisciplinary ethics seminars.
Main Results:
- The program successfully created a tailored curriculum.
- Seminars facilitate interdisciplinary discussion on complex ethical topics.
- Participants engage in case-based ethical reasoning.
Conclusions:
- A specialized Bioethics Education Program can effectively address ethical complexities in pediatric rheumatology.
- Interdisciplinary, case-based learning enhances ethical reasoning for healthcare teams.
- The program supports improved patient care through enhanced ethical understanding.
Abstract:
The medical care of children by pediatric rheumatologists may be ethically very complex. Medical trainees and members of the multidisciplinary health care team must be sensitive to and knowledgeable about ethical issues relevant to the care of their patients, and capable of ethical reasoning. Members of the Bioethics Department and the Division of Rheumatology at the Hospital for Sick Children have cooperatively developed a Bioethics Education Program with a curriculum tailored to meet the needs of the health care team. The quarterly ethics seminars are case based and interdisciplinary. Topics addressed include the nature of the patient-practitioner relationship, research with child participants, the developing autonomy of the child, the child's "best interests," and consent
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