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Related Experiment Videos

NCCN outcomes research database: data collection via the Internet.

J C Niland1

  • 1Division of Information Sciences, City of Hope National Medical Center, Duarte, California, USA.

Oncology (Williston Park, N.Y.)
|February 24, 2001
PubMed
Summary

The National Comprehensive Cancer Network (NCCN) outcomes database tracks cancer care patterns and results. This database, focusing initially on breast cancer, now holds extensive data to improve oncology treatment strategies.

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Area of Science:

  • Oncology
  • Cancer Outcomes Research
  • Health Informatics

Background:

  • The National Comprehensive Cancer Network (NCCN) established an outcomes database in 1997.
  • This initiative aimed to collect and report on patterns of care and patient outcomes in oncology.
  • Breast cancer was the initial focus, followed by non-Hodgkin's lymphoma.

Purpose of the Study:

  • To establish a comprehensive database for tracking cancer care patterns and outcomes.
  • To provide participating institutions with comparative results for quality improvement.
  • To expand data collection to community settings for broader insights.

Main Methods:

  • Longitudinal data collection on cancer patients.
  • Regular compilation and distribution of quarterly reports.

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  • Secure provision of institutional results to Principal Investigators.

    • Main Results:

    • The NCCN outcomes database currently holds over 100,000 records.
    • Data encompasses longitudinal information on more than 5,000 women with breast cancer.
    • The database facilitates analysis of care patterns and outcomes in a real-world setting.

    Conclusions:

    • The NCCN outcomes database is a valuable resource for oncology research.
    • The collected data provides insights into breast cancer care and outcomes.
    • Future efforts aim to extend data collection to community settings for enhanced generalizability.