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Control theory in dying: what do we know?

¹East Carolina University School of Nursing, Greenville, North Carolina, USA.

The American Journal of Hospice & Palliative Care

|March 12, 2002

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Understanding patient and family caregiver needs is crucial for developing effective end-of-life care models. This study examines perceptions of control to improve end-of-life care interventions and support for professional caregivers.

Area of Science:

Gerontology
Palliative Care
Health Psychology

Background:

Developing effective end-of-life care models requires integrating theoretical frameworks with practical patient and family needs.
Patient and family caregiver perspectives are essential for understanding the complexities of end-of-life experiences.
The concept of control significantly influences patient well-being and decision-making during end-of-life care.

Purpose of the Study:

To explore the theoretical applications relevant to current end-of-life care models.
To investigate patient and family caregiver perceptions of control at the end of life.
To propose interventions and implications for professional caregivers based on these findings.

Main Methods:

Literature review of theoretical models in end-of-life care.

Related Experiment Videos

Qualitative exploration of patient and family caregiver experiences and perceptions regarding control.

Synthesis of findings to inform caregiver interventions.

Main Results:

Patient and family caregiver perceptions of control are central to their end-of-life experience.
A lack of perceived control can negatively impact wellness and satisfaction with care.
Understanding these perceptions can guide the development of patient-centered interventions.

Conclusions:

Enhancing patient and family caregiver control is vital for improving end-of-life care.
Interventions should focus on empowering patients and supporting caregivers in maintaining a sense of control.
Professional caregivers require specific training to address control-related needs effectively.