Nursing and respite care services for ventilator-assisted children

Area of Science:

• Pediatric Home Healthcare
• Medical Technology
• Family Support Services

Background:

• Home care for technology-dependent children has grown since the 1970s.
• State-funded programs facilitate children living at home with medical support.
• This care model, while beneficial, presents significant challenges for families and caregivers.

Purpose of the Study:

• To highlight the importance of home care for children needing life-sustaining technology.
• To underscore the challenges faced by families and nurses in this setting.
• To emphasize the value of nursing and respite care services.

Main Methods:

• Review of a state-funded program (Ventilator Assisted Children's Home Program) in Pennsylvania.
• Analysis of services provided to over 600 infants and children requiring mechanical ventilation.
• Qualitative acknowledgment of stress and overwhelm by parents and nurses.

Main Results:

• Over 600 children have been served by the Pennsylvania program.
• Children receive quality medical care while living at home.
• Parents and nurses report stress and overwhelm associated with home care.

Conclusions:

• Home care is a viable alternative to long-term hospitalization for technology-dependent children.
• Nursing and respite care are crucial for supporting families in home-based care.
• Addressing caregiver stress is essential for successful pediatric home healthcare.