Related Experiment Video
Updated: Aug 30, 2026

A Neonatal Mouse Spinal Cord Compression Injury Model
Published on: March 27, 2016
The experience of parenting an adolescent with spina bifida
Kathleen J Sawin1, Melissa Hayden Bellin, Gayle Roux
1School of Nursing, Virginia Commonwealth University, Spina Bifida Program, Children's Hospital, Richmond, VA, USA. sawin@uwm.edu
Abstract:
Parents of adolescents with spina bifida (SB) face unique challenges of which they may not be aware. The purpose of this study was to heighten awareness of the challenge of parenting such adolescents. This enhanced understanding can help rehabilitation professionals optimize their interventions with families. In this qualitative study, which was part of a larger mixed-method descriptive investigation exploring adaptation by adolescents with SB, we used content analysis to evaluate 20 parent interviews for common domain, themes, and subthemes. The analysis yielded four major domains: (a) daily life experiences, (b) the dance of individuation, (c) reflections on parenting, and (d) practice suggestions for healthcare professionals. Overall, experiences of the parents were positive. Parents described meeting daily demands and balancing independence-dependence needs with the adolescent as major challenges. Rehabilitation professionals must provide guidance to foster autonomy, decision making, cognitive skill building, and coping skills to help parents and adolescents manage independence-dependence issues and multiple life demands.
More Related Videos
Related Concept Videos
Influence of Parents and Peers on Identity
Parental Influence on Identity Development
Parents serve as primary guides and managers in an adolescent's life, offering support instrumental in decision-making and personal growth. This guiding role...
Parental Care
Cognitive Development During Adolescence
Sources of Self-Esteem I: Family Experience
Autism Spectrum Disorder
These core symptoms manifest differently among individuals, ranging from mild to severe. The disorder's complexity extends beyond its clinical presentation, encompassing a diverse range of biological, cognitive, and sociocultural influences.
Self-Evaluation: Self-Enhancement and Self-Verification

