The making and adoption of health data standards

Health data standards are key to the U.S. quest to create an aggregated, patient-centric electronic health record; to build regional health information networks; to interchange data among independent sites involved in a person's care; to create a population database for health surveillance and for bioterrorism defense; and to create a personal health record. This paper discusses why health data standards are required, the process of creating those standards, the groups creating those standards, and some of the problems and issues that are affecting the progress and acceptance of standards. It makes a recommendation for dealing with those issues.