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The population prevalence of children receiving invasive home ventilation in Utah
Melissa Gowans1, Heather T Keenan, Susan L Bratton
1Department of Pediatrics, Division of Critical Care Medicine, University of Utah, USA.
Insights
The prevalence of home mechanical ventilation (HMV) for children in Utah remained stable between 1996 and 2004. Key diagnoses and patient demographics requiring HMV also showed little change during this period.
Area of Science:
- Pediatrics
- Pulmonology
- Public Health
Background:
- Home mechanical ventilation (HMV) supports technology-dependent children.
- Understanding the epidemiology of HMV is crucial for resource allocation and care planning.
Purpose of the Study:
- To evaluate the prevalence and characteristics of children requiring invasive HMV in Utah between 1996 and 2004.
- To identify trends in diagnoses, demographics, and age at initiation for pediatric HMV.
Main Methods:
- A retrospective study identified Utah residents aged 16 and under requiring HMV via tracheostomy from 1996 to 2004.
- Demographic data, diagnoses, and age at HMV initiation were collected and compared between 1996 and 2004.
Main Results:
- The prevalence of HMV was 5.0/100,000 in 1996 and 6.3/100,000 in 2004.
- Abnormal ventilatory control (47%) was the most common diagnosis, followed by chronic lung disease (25%).
- Median age at HMV initiation was 6.5 months; 61% were male, 84% lived in urban areas, and 86% had public insurance.
Conclusions:
- The prevalence of pediatric HMV in Utah showed minimal change between 1996 and 2004.
- The primary diagnoses and patient characteristics for HMV remained consistent over the study period.
Abstract:
Children requiring home mechanical ventilation (HMV) represent a select group of technology-dependent patients. We evaluated the prevalence of children using invasive HMV in Utah from 1996 to 2004. Residents of Utah, 16 years old and less ventilated via a tracheostomy between 1996 and 2004 were identified. Children ventilated in 1996 and 2004 were compared. Data including demographic information, diagnosis leading to HMV, and age at initiation were compared between the two groups. The prevalence of HMV in 1996 was 5.0/100,000 (95% CI: 4.4-8.1) and 6.3/100,000 (95% CI: 4.7-8.4) in 2004. Median age at initiation was 6.5 months (IQR: 1.3, 24.0). Sixty-one percent (n = 47) were male, 84% (n = 65) lived in an urban county, and 86% (n = 66) had public insurance. The most frequent diagnostic category was abnormal ventilatory control (n = 36, 47%), followed by chronic lung disease (n = 19, 25%), airway abnormalities (n = 12, 16%), and neuromuscular weakness (n = 10, 13%). Thirteen patients died (17%). The median length of HMV was 39 months (IQR: 15, 102). Diagnostic categories, age at initiation of HMV, and sex did not differ significantly over the 8 years. The prevalence of children requiring HMV differed very little between 1996 and 2004. Moreover, the diagnoses for which children received this therapy remained constant.
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