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Patient education in glaucoma: what do patients know about glaucoma?
Vital Paulino Costa1, George L Spaeth, Maura Smith
1Universidade Estadual de Campinas, Campinas, SP, Brazil. vp.costa@uol.com.br
Glaucoma patient knowledge about their condition and treatment is often limited, particularly in Brazil compared to the US. Educational level significantly impacts patient understanding of glaucoma.
Area of Science:
- Ophthalmology
- Patient Education
- Public Health
Background:
- Glaucoma is a leading cause of irreversible blindness worldwide.
- Effective management of glaucoma relies heavily on patient adherence to treatment and understanding of the disease.
- Assessing patient knowledge is crucial for developing targeted educational interventions.
Purpose of the Study:
- To evaluate the level of knowledge glaucoma patients possess regarding their disease and its management.
- To compare patient knowledge between an urban American setting and an urban Brazilian setting.
Main Methods:
- A cross-sectional study involving 183 patients at Wills Eye Hospital (USA) and 100 patients at University of Campinas (Brazil).
- Semi-structured interviews were conducted using 18 open-ended questions to assess patient understanding of glaucoma, medications, intraocular pressure, and diagnostic tests.
- Statistical analysis, including linear regression, was used to identify factors associated with patient knowledge.
Main Results:
- In the US group, significant percentages of patients lacked understanding of glaucoma (44%), medication purpose (30%), normal intraocular pressure (47%), and visual field testing (45%).
- In the Brazil group, even higher percentages showed deficits in understanding glaucoma (54%), medication purpose (54%), normal intraocular pressure (80%), and visual field testing (94%).
- Higher education levels were positively correlated with better glaucoma knowledge in both groups (r=0.65, p=0.001).
Conclusions:
- There are significant gaps in glaucoma patient knowledge, with a greater deficit observed in the Brazilian cohort compared to the American cohort.
- Patient education strategies need improvement to enhance understanding of glaucoma and its treatment.
- Further research is needed to develop and implement effective interventions to improve patient knowledge and adherence.
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