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Published on: December 31, 2017
International urinary tract imaging basic spinal cord injury data set
F Biering-Sørensen1, M Craggs, M Kennelly
1Clinic for Spinal Cord Injuries, NeuroScience Centre, Rigshospitalet, and University of Copenhagen, Copenhagen, Denmark. finbs@rh.dk
Spinal Cord
|November 26, 2008
Summary
A new International Urinary Tract Imaging Basic Spinal Cord Injury (SCI) Data Set was developed to standardize data collection. This aims to improve comparable minimal data reporting for spinal cord injury patients.
Area of Science:
- Urology
- Neurology
- Medical Informatics
Background:
- Standardized data collection is crucial for advancing spinal cord injury (SCI) research and clinical practice.
- Existing data sets may lack specific details regarding urinary tract imaging in SCI patients.
- The International SCI Data Sets initiative aims to create comprehensive and standardized data collection tools.
Purpose of the Study:
- To develop and establish the International Urinary Tract Imaging Basic SCI Data Set.
- To ensure uniformity and comparability in collecting minimal data related to urinary tract imaging in SCI.
- To integrate this data set within the existing framework of the International SCI Data Sets.
Main Methods:
- An international working group was formed with representatives from key organizations like the International Continence Society, European Association of Urology, American Spinal Injury Association (ASIA), and International Spinal Cord Society (ISCoS).
- The data set underwent iterative development, including drafting, review, and feedback from numerous international societies, experts, and patient representatives.
- Definitions for each variable and response category were meticulously crafted to promote consistent data collection and reporting.
Main Results:
- The International Urinary Tract Imaging Basic SCI Data Set includes variables derived from investigations such as intravenous pyelography, CT urogram, ultrasound, X-ray, renography, clearance, cystogram, voiding cystogram, and videourodynamics.
- Comprehensive instructions for data collection and the data sheet are made freely accessible online.
- Endorsement from relevant international organizations and societies is being sought to ensure widespread adoption.
Conclusions:
- The newly created International Urinary Tract Imaging Basic SCI Data Set provides a standardized approach for collecting essential urinary tract imaging data in spinal cord injury.
- This initiative facilitates the collection of comparable minimal data, crucial for research and improved patient care.
- The availability of the data set and instructions online promotes its accessibility and implementation globally.
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