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Getting ready for user involvement in a systematic review
Elizabeth Smith1, Sheila Donovan, Peter Beresford
1National Nursing Research Unit, King's College London, UK. elizabeth.m.smith@kcl.ac.uk
Summary
This study explores preparing for user involvement in systematic reviews, highlighting its benefits for research quality and outcomes. Engaging service users improves information access and relevance, emphasizing the relational aspects of research.
Area of Science:
- Health Services Research
- Systematic Review Methodology
- Patient and Public Involvement
Background:
- Limited active involvement of service users in health and social care systematic reviews.
- Evidence suggests user involvement enhances research quality and outcomes.
- Need for exploring diverse approaches to maximize benefits and understand potential negative outcomes of user involvement.
Purpose of the Study:
- To support the development of user involvement in systematic reviews.
- To explain theoretical, ethical, and practical considerations for preparing user involvement.
- To share learning from establishing a service-user reference group.
Main Methods:
- Conceptualizing user involvement and developing a representation framework.
- Identifying, targeting, and recruiting service users from national consumer organizations.
- Establishing mutuality and reciprocity within a service-user reference group.
Main Results:
- Facilitated access to crucial information and identification of service user priorities.
- Enhanced dissemination of review findings to relevant stakeholders.
- Gained insights into navigating consumer networks and managing recruitment processes.
Conclusions:
- Service user involvement improves information access, relevance, and dissemination in systematic reviews.
- User involvement is fundamentally about relationships within social contexts.
- Early research design decisions significantly impact both service users and researchers.
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