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Heart failure registry: a valuable tool for improving the management of patients with heart failure
Asa Jonsson1, Magnus Edner, Urban Alehagen
1Department of Cardiology, Ryhov County Hospital, Jönköping, Sweden. asa.jonsson@lj.se
Insights
The Swedish Heart Failure Registry (S-HFR) helps improve heart failure (HF) patient care by providing online data. This tool supports centers in optimizing diagnosis and treatment for better patient outcomes.
Area of Science:
- Cardiology
- Health Informatics
- Public Health
Background:
- Established guidelines for heart failure (HF) diagnosis and treatment exist, yet many patients are not adequately diagnosed or treated.
- The Swedish Heart Failure Registry (S-HFR) was developed to address these gaps and optimize HF patient management.
Purpose of the Study:
- To evaluate the utility of the Swedish Heart Failure Registry (S-HFR) as a tool for improving the diagnosis and treatment of heart failure (HF) patients.
- To assess the current management practices and patient characteristics within the S-HFR.
Main Methods:
- The S-HFR is an internet-based registry collecting data from participating centers on HF patients.
- Data includes patient demographics, diagnostic test results (ECG, echocardiography), and medication use.
- By December 2007, 16,117 patients from 78 units were included, with 10,229 followed for at least one year.
Main Results:
- Electrocardiograms were available for 97% of patients; 51% were in sinus rhythm, and 38% in atrial fibrillation.
- Echocardiography was performed in 83% of patients.
- Pharmacological treatment included angiotensin-converting enzyme inhibitors/angiotensin II receptor blockers (77%), beta-blockers (80%), aldosterone antagonists (34%), and diuretics (83%).
Conclusions:
- The S-HFR is a valuable tool for enhancing the management of heart failure (HF) patients.
- Online reports from the registry empower participating centers to identify areas for improvement in diagnosis and medical treatment.
- The registry facilitates focused efforts to optimize patient care pathways and outcomes.
Aims:
Guidelines on how to diagnose and treat patients with heart failure (HF) are published regularly. However, many patients do not fulfil the diagnostic criteria and are not treated with recommended drugs. The Swedish Heart Failure Registry (S-HFR) is an instrument which may help to optimize the handling of HF patients.
Methods And Results:
The S-HFR is an Internet-based registry in which participating centres (units) can record details of their HF patients directly online and transfer data from standardized forms or from computerized patient documentation. Up to December 2007, 16,117 patients from 78 units had been included in the S-HFR. Of these, 10,229 patients had been followed for at least 1 year, and 2133 deaths were recorded. Online reports from the registry showed that electrocardiograms were available for 97% of the patients. Sinus rhythm was found in 51% of patients and atrial fibrillation in 38%. Echocardiography was performed in 83% of the patients. Overall, 77% of patients were treated with angiotensin converting enzyme inhibitors or angiotensin II receptor blockers, 80% were on beta-blockers, 34% on aldosterone antagonists, and 83% on diuretics.
Conclusion:
The S-HFR is a valuable tool for improving the management of patients with HF, since it enables participating centres to focus on their own potential for improving diagnoses and medical treatment, through the online reports provided.
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