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Development of the WHOQOL disabilities module.

M J Power1, A M Green,

  • 1Section of Clinical Psychology, University of Edinburgh, Medical School, Teviot Place, Edinburgh, EH8 9AG, UK. mjpower@staffmail.ed.ac.uk

Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation
|March 11, 2010
PubMed
Summary
This summary is machine-generated.

A new 12-item module, the WHOQOL-DIS, has been developed to assess the quality of life for adults with physical or intellectual disabilities. This module enhances existing World Health Organization measures for disability assessment.

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Area of Science:

  • Psychometrics
  • Disability Studies
  • Health Psychology

Background:

  • The World Health Organization (WHO) WHOQOL measures are widely used for assessing quality of life.
  • Existing measures may not fully capture the nuances of quality of life for individuals with disabilities.
  • There is a need for specialized tools to accurately assess the quality of life in diverse disability populations.

Purpose of the Study:

  • To develop an add-on module, WHOQOL-DIS, for the WHOQOL measures.
  • To specifically assess the quality of life for adults with physical or intellectual disabilities.
  • To ensure the module aligns with standard WHOQOL development methodology.

Main Methods:

  • Focus groups were conducted with individuals with physical and intellectual disabilities, their caregivers, and professionals to identify quality of life gaps.
  • Items generated from focus groups were pilot-tested with 1,400 respondents across 15 centers worldwide.
  • Psychometric methods, both classical and modern, were employed for item reduction and analysis in pilot and field trials involving nearly 3,800 respondents.

Main Results:

  • Development of a 12-item module, WHOQOL-DIS, designed for assessing quality of life in individuals with physical or intellectual disabilities.
  • Successful identification of relevant quality of life domains through extensive global data collection.
  • Validation of items using robust psychometric analyses.

Conclusions:

  • The WHOQOL-DIS is a validated 12-item module for use with WHOQOL-BREF or WHOQOL-100.
  • The module provides a means to assess quality of life in adults with physical or intellectual disabilities.
  • Proposed modifications for intellectual disability assessment include simplified wording, a three-point response scale, and visual aids like smiley faces.