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Assessment and Evaluation of the High Risk Neonate: The NICU Network Neurobehavioral Scale
Published on: August 25, 2014
Ethical problems in the care of high risk neonates
1Fondazione Maruzza Lefebvre D'Ovidio Onlus, Via del Nuoto 11, Rome, Italy. m.orzalesi@maruzza.org
Insights
Limiting neonatal intensive care can be a humane choice when survival offers only suffering or severe disability. This approach considers the child
Area of Science:
- Neonatal Medicine
- Medical Ethics
Background:
- Neonatal care advancements have improved survival rates for premature and critically ill infants.
- The definition of neonatal viability has evolved due to these advancements.
- Ethical dilemmas arise when intensive care prolongs suffering or results in severe disabilities.
Purpose of the Study:
- To examine the ethical considerations surrounding the limitation of neonatal intensive care.
- To discuss practical situations where treatment limitation is considered.
- To explore parental involvement and neonatologists' perspectives on these decisions.
Main Methods:
- Review of ethical principles relevant to neonatal care decisions.
- Analysis of common clinical scenarios necessitating treatment limitation.
- Discussion of parental roles in shared decision-making.
- Examination of neonatologists' opinions and practices across European intensive care units.
Main Results:
- Limiting intensive treatments (withholding or withdrawal) may be a more humane option in specific cases.
- Decisions involve balancing potential survival against suffering and quality of life.
- Parental involvement is crucial in the decision-making process.
- Neonatologists' views and practices vary across different European centers.
Conclusions:
- Limitation of neonatal intensive care is a complex ethical issue.
- It requires careful consideration of the infant's prognosis, suffering, and family's well-being.
- Shared decision-making involving parents and neonatologists is essential.
Abstract:
Recent progress in neonatal care has greatly improved the prognosis and the probabilities of survival in very sick or very preterm neonates and has modified the concept and limits of the so called viability. However, in some circumstances, when the death of the baby can only be postponed temporarily, at the price of severe suffering, or when survival is associated with severe disabilities and an intolerable life for the child and the family, then it might not be appropriate to utilize all the armamentarium of neonatal intensive care. In such circumstances, limitation of intensive treatments (withholding or withdrawal) generally invasive and painful, could represent a more human and reasonable alternative. The ethical principles underlying those decisions, the most frequent situations occurring in practice, the role of parents in the decision-making process, and the opinions and behavior of neonatologists from many European intensive care units will be examined and discussed.
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