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A Protocol for Comprehensive Assessment of Bulbar Dysfunction in Amyotrophic Lateral Sclerosis (ALS)
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Published on: February 21, 2011

Communication Support for People with ALS.

David Beukelman1, Susan Fager, Amy Nordness

  • 1Institute for Rehabilitation Science and Engineering Madonna Rehabilitation Hospital and University of Nebraska, 202 Barkley Memorial Center, P.O. Box 830732, Lincoln, NE 68583-0732, USA.

Neurology Research International
|May 24, 2011
PubMed
Summary
This summary is machine-generated.

Amyotrophic lateral sclerosis (ALS) often causes severe dysarthria, impacting communication. Early referral for augmentative and alternative communication (AAC) is crucial for maintaining connection as speech declines.

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Area of Science:

  • Neurology
  • Speech-Language Pathology
  • Rehabilitation Medicine

Background:

  • Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease.
  • Motor speech disorders, specifically dysarthria, are nearly universal in ALS patients.
  • Significant communication impairment affects 80-95% of individuals with ALS as the disease advances.

Purpose of the Study:

  • To highlight the critical importance of timely referral for augmentative and alternative communication (AAC) assessment and intervention in ALS.
  • To emphasize the rapid deterioration of speech intelligibility in ALS and the limited window for intervention.
  • To underscore AAC's role in maintaining functional communication for individuals with ALS.

Main Methods:

  • This study is a review of current clinical practices and literature regarding communication in ALS.
  • Analysis of the progression of speech disorders in ALS.
  • Examination of the effectiveness and adoption rates of AAC interventions.

Main Results:

  • Speech intelligibility in ALS often declines rapidly, leaving insufficient time for intervention if referral is delayed.
  • Augmentative and alternative communication (AAC) is increasingly accepted and utilized by individuals with ALS.
  • Many individuals with ALS continue to use AAC effectively until the final weeks of life.

Conclusions:

  • Prompt referral for AAC assessment is a critical clinical decision for individuals with ALS.
  • Effective AAC interventions can sustain communication abilities throughout the disease trajectory.
  • Optimizing the timing of AAC intervention is essential for preserving quality of life in ALS patients.