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Pediatric palliative care
Karen Moody1, Linda Siegel, Kathryn Scharbach
1Division of Pediatric Hematology/Oncology, Albert Einstein College of Medicine, Children's Hospital at Montefiore, 3415 Bainbridge Avenue, 111 East 210th Street, Rosenthal 3, Bronx, NY 10463, USA. kmoody@montefiore.org
Insights
Pediatric palliative care faces barriers like insufficient training and resources. Addressing these is crucial for improving care for critically ill children and their families.
Area of Science:
- Pediatric Palliative Care
- Child Health
- End-of-Life Care
Background:
- Pediatric palliative care is advancing but faces significant challenges.
- Barriers include a shortage of trained professionals, inadequate funding, and limited research.
- Cultural attitudes towards childhood death also impede progress.
Purpose of the Study:
- To review the current state of pediatric palliative care.
- To identify key areas for improvement and resource needs.
- To provide a comprehensive overview for practitioners and families.
Main Methods:
- Literature review and synthesis of existing research.
- Analysis of epidemiological data.
- Identification of best practices in communication, decision-making, and symptom management.
Main Results:
- Significant barriers hinder appropriate pediatric palliative care provision.
- Key areas reviewed include communication, ethics, symptom management, and psychosocial support.
- Educational and support resources are identified.
Conclusions:
- Overcoming barriers requires enhanced training, funding, and research.
- Comprehensive care addresses medical, ethical, and psychosocial needs.
- Resources are available to support healthcare professionals and families.
Abstract:
Progress in pediatric palliative care has gained momentum, but there remain significant barriers to the appropriate provision of palliative care to ill and dying children, including the lack of properly trained health care professionals, resources to finance such care, and scientific research, as well as a continued cultural denial of death in children. This article reviews the epidemiology of pediatric palliative care, special communication concerns, decision making, ethical and legal considerations, symptom assessment and management, psychosocial issues, provision of care across settings, end-of-life care, and bereavement. Educational and supportive resources for health care practitioners and families, respectively, are included.
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