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Relationships between community-based processes for research ethics review and institution-based IRBs: a national
Nancy Shore1, Elaine Drew, Ruta Brazauskas
1University of New England School of Social Work, Portland, ME 04103, USA. nshore@une.edu
Summary
Community groups and institution-based research ethics boards (I-REBs) often review the same studies. Positive relationships, marked by communication, enhance ethical research reviews for community-engaged projects.
Area of Science:
- Public Health
- Research Ethics
- Community-Based Participatory Research
Background:
- Community groups are increasingly establishing their own research ethics review processes.
- These community-based review processes aim to guide research conduct within local contexts.
- Collaboration between community groups and institutional review boards is crucial for ethical research.
Purpose of the Study:
- To survey community-based research ethics review processes regarding their interactions with institution-based research ethics boards (I-REBs).
- To identify factors influencing the quality of relationships between community review processes and I-REBs.
- To understand challenges and facilitators in the collaboration between community and institutional ethics review.
Main Methods:
- A survey was distributed to 109 community-based research ethics review processes.
- The survey assessed the nature of their relationships with institution-based research ethics boards (I-REBs).
- Statistical analysis was used to identify correlations between relationship quality and communication frequency.
Main Results:
- 92% of surveyed community review processes reported that their studies were also reviewed by an I-REB.
- Over half of the community review processes described their relationship with I-REBs as positive.
- Positive relationships were significantly associated with increased communication between community review processes and I-REBs.
- Key challenges included delays, communication issues, and a lack of understanding of community-based participatory research by I-REBs.
Conclusions:
- Strengthening collaborative relationships between community-based review processes and I-REBs is essential.
- Enhanced communication and mutual understanding can improve the review of community-engaged research.
- Fostering better partnerships can lead to more effective and ethical research practices in communities.
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