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NMO-DBr: the Brazilian Neuromyelitis Optica Database System
Marco A Lana-Peixoto1, Lívia Edwiges Talim, Alessandra C Faria-Campos
1CIEM MS Research Center, Belo Horizonte MG, Brazil. marco.lanapma@gmail.com
Arquivos De Neuro-Psiquiatria
|August 31, 2011
Summary
The Brazilian Neuromyelitis Optica Database System (NMO-DBr) centralizes patient data for Neuromyelitis Optica spectrum disorders. This system enhances clinical consistency and research by standardizing information collection and analysis.
Area of Science:
- Neurology
- Immunology
- Data Science
Background:
- Neuromyelitis Optica (NMO) and related disorders require comprehensive data for effective management and research.
- Existing data collection methods can be fragmented, hindering large-scale analysis.
Purpose of the Study:
- To introduce the Brazilian Neuromyelitis Optica Database System (NMO-DBr).
- To describe its capabilities in collecting, storing, retrieving, and analyzing patient data for NMO and related disorders.
Main Methods:
- Utilized Flux, a Laboratory Information Management System (LIMS), for data management.
- Compiled data from medical records of patients with NMO spectrum disorders and variants, including those with specific MRI findings or AQP4 antibody positivity.
Main Results:
- The NMO-DBr includes detailed patient information covering demographics, symptoms, medical history, diagnostic tests (CSF, blood, MRI, OCT), and treatments.
- The system ensures data confidentiality, performs cross-checking, and facilitates statistical analysis.
Conclusions:
- NMO-DBr serves as a valuable tool for healthcare professionals.
- It standardizes patient data management, improving clinical practice consistency and advancing research in NMO spectrum disorders.
