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Transition in young adults with spina bifida: a qualitative study
1College of Nursing, University of Wisconsin-Milwaukee, Milwaukee, WI, USA. mridosh@luc.edu
Child: Care, Health and Development
|October 20, 2011
Summary
Young adults with spina bifida face challenges transitioning to adulthood, including struggles for independence and social stigma. Enhanced support and advocacy are crucial for their self-management and social development.
Area of Science:
- Developmental Psychology
- Rehabilitation Medicine
- Public Health
Background:
- Spina bifida presents complex challenges for adolescents and young adults.
- This demographic faces unique developmental and social hurdles during the transition to adulthood.
Purpose of the Study:
- To examine the transition to adulthood for young adults with spina bifida.
- To explore condition-related needs and essential life skills for this transition process.
Main Methods:
- Qualitative narrative inquiry approach.
- Interviews conducted with 10 participants aged 18-25.
- Focus on self-management, independence, and inner strength within an ecological model.
Main Results:
- Three emergent themes: struggling for independence, limited social interactions and stigma, and building inner strength.
- Analysis of life stories revealed key transition experiences.
- Identified challenges in achieving self-management and social development.
Conclusions:
- The study enhances understanding of transition challenges for young adults with spina bifida.
- Findings underscore the need for increased advocacy and professional intervention.
- Highlights critical areas for health and social system support.
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