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TBase - an Integrated Electronic Health Record and Research Database for Kidney Transplant Recipients
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The Knowledge Program: an innovative, comprehensive electronic data capture system and warehouse.

Irene Katzan1, Micheal Speck, Chris Dopler

  • 1Neurological Institute, Cleveland Clinic, OH, USA.

AMIA ... Annual Symposium Proceedings. AMIA Symposium
|December 24, 2011
PubMed
Summary

The Knowledge Program (KP) improves electronic health record (EHR) data quality by systematically collecting discrete patient information and patient-reported outcomes. This enhances data retrievability for research and quality improvement initiatives.

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Area of Science:

  • Health Informatics
  • Clinical Data Management
  • Patient Outcomes Research

Background:

  • Electronic Health Records (EHRs) contain valuable data but often lack structure for research and quality improvement.
  • Clinical information in EHRs is frequently free text, leading to variability and difficulty in data extraction.
  • Discrete data on patient functional status is typically absent, limiting comprehensive analysis.

Purpose of the Study:

  • To describe the development and implementation of the Knowledge Program (KP).
  • To enhance the collection and retrievability of discrete clinical information within EHRs.
  • To facilitate the use of EHR data for research, quality improvement, and patient care.

Main Methods:

  • Developed the Knowledge Program (KP) for systematic collection of discrete clinical information.
  • Integrated patient-reported outcomes capture into the EHR.
  • Utilized Epic EHR features and an external IT infrastructure for enhanced functionality.

Main Results:

  • The KP systematically collects discrete patient-reported outcomes.
  • Improved data retrievability for research and quality assessment.
  • Enabled more refined analyses of care outcomes through discrete data.

Conclusions:

  • The Knowledge Program (KP) effectively addresses limitations in EHR data structure.
  • Systematic collection of discrete data, including patient-reported outcomes, enhances EHR utility.
  • The KP provides a framework for leveraging EHR data to improve patient care and research capabilities.