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Why do young people with CFS/ME feel anxious? A qualitative study
11Paediatric CFS/ME Service, Royal National Hospital for Rheumatic Diseases, UK.
Clinical Child Psychology and Psychiatry
|October 25, 2012
Summary
Young individuals with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) face significant social and separation anxiety. Their experiences are compounded by the perceived illegitimacy of their illness, leading to additional distress.
Area of Science:
- Pediatric Psychology
- Chronic Illness Research
- Mental Health Studies
Background:
- Young people with CFS/ME exhibit higher psychological distress than healthy peers.
- A significant portion (38%) of youth with CFS/ME exceed clinical anxiety cut-offs.
- Social and separation anxiety are prevalent across demographics in this population.
Purpose of the Study:
- To qualitatively explore social and separation anxiety in adolescents with CFS/ME.
- To understand the lived experiences of young people with CFS/ME regarding anxiety.
- To identify unique challenges faced by this patient group.
Main Methods:
- Qualitative study employing interpretative phenomenological analysis.
- Semi-structured, participant-led interviews with eleven young people (aged 12-18) diagnosed with CFS/ME.
- Thematic analysis of interview transcripts to identify recurring patterns and experiences.
Main Results:
- Five key themes emerged: social loss, uncertainty, self-vulnerability, individual differences, and recovery contributions.
- Experiences often mirrored those of adolescents with other chronic illnesses.
- Unique challenges included perceived illness illegitimacy, difficulty explaining symptoms, peer bullying, and disbelief from adults.
Conclusions:
- Adolescents with CFS/ME experience profound social and separation anxiety.
- The perceived illegitimacy of CFS/ME presents a significant additional burden.
- Clinicians must recognize and address these psychosocial challenges to provide effective support.
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