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Cancer caregivers information needs and resource preferences
1Fox Chase Cancer Center, 333 Cottman Avenue, Robert C. Young Pavilion, 4th Floor, Philadelphia, PA, 19111, USA. margaret.longacre@fccc.edu
Summary
Cancer caregivers need information on psychosocial care, direct care, and care management. Preferred resources vary by caregiver burden, with higher burden linked to health professionals and lower burden to informal sources.
Area of Science:
- Oncology
- Caregiver Support
- Health Information Needs
Background:
- Cancer caregivers face significant challenges in providing care.
- Information access is crucial for effective caregiver support and patient outcomes.
- Understanding specific information needs and resource preferences is vital for targeted interventions.
Purpose of the Study:
- To identify information needs of cancer caregivers regarding psychosocial care, direct care, and care management.
- To explore preferred information resources among cancer caregivers.
- To examine how caregiver characteristics influence information needs and resource preferences.
Main Methods:
- Cross-sectional telephone interviews with 1,247 family caregivers, including 104 cancer caregivers.
- Data collected on information needs across three categories: psychosocial care, direct care, and care management.
- Analysis of associations between caregiver burden, demographics, and preferred information sources.
Main Results:
- A majority of cancer caregivers reported unmet information needs in all three categories.
- Information on managing physical and emotional stress was frequently needed (40% of caregivers).
- Male caregivers reported a greater need for direct care information than female caregivers.
- Higher objective burden correlated with a preference for health professional information sources, while lower burden favored informal sources.
Conclusions:
- Cancer caregivers have diverse and substantial information needs across multiple domains.
- Caregiver burden significantly influences preferences for information sources, highlighting the need for tailored resource delivery.
- Interventions should consider subgroup-specific needs and preferred channels for information dissemination to optimize caregiver support.
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