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Percutaneous endoscopic gastrostomy tube placement in children with neurodevelopmental disabilities. Parents'

Abdullah H Alsaggaf1, Mohammed M Jan, Omar I Saadah

  • 1Department of Pediatrics, Faculty of Medicine, King Abdulaziz University, Jeddah, Kingdom of Saudi Arabia.

Saudi Medical Journal
|July 18, 2013
PubMed

Insights

Most parents have negative attitudes toward percutaneous endoscopic gastrostomy (PEG) tube placement due to poor information. However, their actual experience is often better than expected, leading to regret over delayed PEG tube insertion.

Area of Science:

  • Pediatric Gastroenterology
  • Medical Device Technology
  • Patient Care Management

Background:

  • Percutaneous endoscopic gastrostomy (PEG) is a crucial procedure for nutritional support in children.
  • Parental attitudes significantly influence treatment decisions and adherence.
  • Understanding parental perspectives on PEG tube placement is essential for improving patient outcomes.

Purpose of the Study:

  • To investigate parental attitudes towards percutaneous endoscopic gastrostomy (PEG) tube placement.
  • To identify factors contributing to negative parental perceptions of the PEG procedure.

Main Methods:

  • A retrospective study involving 30 parents of pediatric patients who underwent PEG tube placement.
  • Data collected via a 25-item questionnaire assessing demographics, attitudes, and experiences.
  • Analysis conducted at King Abdulaziz University Hospital, Jeddah, Saudi Arabia.

Main Results:

  • A majority of parents (73%) held negative attitudes towards PEG placement, linked to significant procedure delays.
  • Only 43% of parents felt adequately informed about the procedure.
  • Post-procedure, 67% reported a better-than-expected experience, positively correlated with information levels.

Conclusions:

  • Inadequate parental information significantly impacts expectations and experiences with PEG tube placement.
  • Most parents found the PEG procedure less daunting than anticipated and regretted not opting for it sooner.
  • Improving pre-procedure information delivery is crucial for enhancing parental satisfaction and potentially reducing treatment delays.
Abstract

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