[Sociomedical aspects of primary Sjögren's syndrome]

Forty patients with primary Sjögren's syndrome were interviewed. Poor social conditions during adolescence were not predisposing factors. A significantly higher number of patients grew up in urban than in rural districts, but this difference may be because most of these patients were from Zealand. Patients over the age of 35 years had left school later than the normal population. The matrimonial status did not differ from the normal population, except that the patients had significantly fewer children. The first symptoms of disease were recorded at an age of 20-50 years by 73%. More than half of the patients employed at commencement of the disease had to give up, and received disability pensions or retired early. A number of patients found less demanding jobs. The reasons were extreme fatigue (54%), arthralgia (42%), ocular- (17%) or oral dryness (8%). Social isolation was a problem for many patients and about 50% reported psychological problems. Drug expenses were moderate, whereas dental treatment was often considered to be a major economic problem.