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Development and validation of a pediatric IBD knowledge inventory device: the IBD-KID
Derek Haaland1, Andrew S Day, Anthony Otley
1*Department of Pediatrics, Division of Gastroenterology, Dalhousie University, Halifax, Nova Scotia, Canada †Department of Paediatrics, University of Otago (Christchurch), Christchurch, New Zealand.
A new questionnaire effectively assesses inflammatory bowel disease (IBD) knowledge in pediatric patients and their parents. This tool helps understand and improve IBD education for young individuals.
Area of Science:
- Pediatric Gastroenterology
- Health Education
- Patient Assessment
Background:
- Existing inflammatory bowel disease (IBD) knowledge questionnaires are unsuitable for pediatric populations.
- There is a need for a validated tool to assess IBD knowledge in children and adolescents.
Purpose of the Study:
- To develop and validate a questionnaire assessing IBD-related knowledge in pediatric patients.
- To simultaneously evaluate the knowledge of parents of pediatric IBD patients.
Main Methods:
- The IBD-Knowledge Inventory Device was created through item generation and reduction.
- The questionnaire was administered to 99 pediatric IBD patients (ages 10-17) and their parents.
- Discriminatory validity was assessed using pediatric residents, nurses, and ward clerks.
Main Results:
- Parental knowledge scores (15±4) were higher than patient scores (11±4).
- Patient and parent knowledge scores were strongly correlated (r=0.62).
- Patient knowledge varied by disease type (Crohn's higher than ulcerative colitis) and perceived knowledge.
Conclusions:
- A valid questionnaire for assessing IBD knowledge in pediatric patients and their parents has been developed.
- The IBD-Knowledge Inventory Device is suitable for use in older children and adolescents with IBD.
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