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[The process of meaning-making in adjustment to multiple sclerosis]
C Couture1, A Brassard2, A Brault-Labbé2
1Centre de réadaptation Lucie-Bruneau, 2275, Laurier est, Montréal, H2H 2N8 Canada.
Revue Neurologique
|April 5, 2014
Summary
People with multiple sclerosis (MS) find meaning by managing symptoms and engaging in meaningful activities. This process involves adapting to the disease through various strategies, fostering psychological balance.
Area of Science:
- Neurology
- Psychology
- Qualitative Research
Context:
- Progressive neurological disorders like multiple sclerosis (MS) necessitate continuous adaptation.
- Finding meaning is crucial for psychological well-being in chronic illness.
- Meaning-making is often easier for those in early disease stages or with minimal limitations.
Purpose:
- To explore the meaning-making process in individuals with moderate to severe multiple sclerosis (MS).
- To identify key elements and strategies involved in adapting to advanced MS.
Summary:
- Phenomenological analysis of interviews with eight participants revealed adaptation occurs through symptom management and engagement in meaningful, useful activities.
- Meaning is derived from seeking existential balance, navigating tensions between acceptance and determination.
- A continuum of strategies, from denial to embracing the disease, facilitates adaptation.
Impact:
- Understanding meaning-making in MS can inform interventions to support severely affected individuals.
- This research highlights the importance of psychological adaptation in managing chronic neurological conditions.
- Findings can guide healthcare professionals in assisting patients with advanced MS in their adjustment process.
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