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Public perspectives on biospecimen procurement: what biorepositories should consider
Jamie L'Heureux1, Jeffrey C Murray, Elizabeth Newbury
11 Department of 1Pediatrics, Carver College of Medicine, The University of Iowa , Iowa City, Iowa.
Biopreservation and Biobanking
|May 23, 2014
Summary
Public acceptance of biobanking is high for both residual and direct specimen procurement. Donor awareness and minimizing inconvenience are key to public trust in biobanking research.
Area of Science:
- Biobanking and Public Health
- Biomedical Research Ethics
Background:
- Human biospecimens are crucial for biobanking and medical research.
- Understanding public perception of biospecimen procurement is vital for biobank sustainability.
Purpose of the Study:
- To investigate public perspectives on residual versus direct biospecimen procurement methods.
- To inform biobank strategies regarding donor engagement and sample acquisition.
Main Methods:
- Random selection of the public for focus groups and telephone surveys.
- Data collection on preferences and concerns regarding two distinct procurement strategies.
Main Results:
- A majority (75%) found both residual and direct procurement equally acceptable.
- Concerns identified include donor inconvenience, reduced sample accrual, and awareness of residual sample use.
Conclusions:
- Public willingness to donate biospecimens exists for both procurement methods.
- Minimizing donor discomfort and ensuring informed consent can enhance acceptance of direct procurement and address concerns about residual samples.
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