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Who are the children using hospice care?
Lisa C Lindley1, Shih-Lung Shaw
1College of Nursing, University of Tennessee, Knoxville, Tennessee, USA.
Journal for Specialists in Pediatric Nursing : JSPN
|August 19, 2014
Summary
This study identified characteristics of children in hospice care, finding they are diverse, often older, and have serious health needs. Understanding these traits helps pediatric nurses better support families needing hospice services.
Area of Science:
- Pediatric Palliative Care
- Health Services Research
- Child Health Outcomes
Background:
- Hospice care for children is a specialized area of healthcare.
- Understanding the profile of pediatric hospice users is crucial for service provision.
Purpose of the Study:
- To examine the defining characteristics of children utilizing hospice care.
- To inform clinical practice and resource allocation in pediatric hospice.
Main Methods:
- Analysis of California Medicaid administrative databases.
- Application of the Andersen Model of Health Services Use.
- Description of 76 children enrolled in hospice.
Main Results:
- Children in hospice were diverse, with enabling community resources and significant health needs.
- Users were often older (15-20 years), lived closer to pediatric hospices, and had serious conditions like neuromuscular disease with comorbidities.
Conclusions:
- Pediatric nurses can enhance care by identifying and engaging families with children most in need of hospice.
- This research supports targeted interventions and improved clinical practice in pediatric end-of-life care.
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