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ICF-CY code set for infants with early delay and disabilities (EDD Code Set) for interdisciplinary assessment: a
Yi-Ling Pan1, Ai-Wen Hwang, Rune J Simeonsson
1Division of Physical Therapy, Department of Physical Medicine and Rehabilitation, National Taiwan University Hospital , Taipei , Taiwan, R.O.C. .
Insights
A new code set based on the International Classification of Functioning, Disability and Health: Children and Youth Version (ICF-CY) was developed for infants under three years old with developmental delay/disabilities. This tool aids multidisciplinary teams in describing infant functioning holistically.
Area of Science:
- Rehabilitation Medicine
- Developmental Pediatrics
- Health Informatics
Background:
- Comprehensive assessment of functioning is crucial for early intervention in infants with developmental delay/disabilities (DD).
- The International Classification of Functioning, Disability and Health: Children and Youth Version (ICF-CY) offers a standardized framework for describing health and functioning.
- A specialized code set derived from the ICF-CY can enhance its practical application in team evaluations for this population.
Purpose of the Study:
- To develop an ICF-CY code set specifically for infants under three years of age with early delay and disabilities (EDD Code Set).
- To facilitate initial team evaluations by providing a structured approach to describing infant functioning.
Main Methods:
- A Delphi survey was employed to reach consensus among international professionals.
- Participants included experts experienced in implementing the ICF-CY and professionals from early intervention services in Taiwan.
- The survey guided the selection of relevant ICF-CY categories for the EDD Code Set.
Main Results:
- Twenty-five professionals participated in the Delphi survey.
- A total of 82 ICF-CY second-level categories were identified for the EDD Code Set.
- These categories were distributed across four domains: 28 in Activities and Participation, 29 in Body Functions, 10 in Body Structures, and 15 in Environmental Factors.
Conclusions:
- The EDD Code Set, comprising 82 ICF-CY categories, can serve as a valuable tool for multidisciplinary teams.
- It enables a holistic description of functioning in infants under three with DD during initial evaluations.
- Further validation and clinical utility studies are recommended to confirm its effectiveness.
Purpose:
Comprehensive description of functioning is important in providing early intervention services for infants with developmental delay/disabilities (DD). A code set of the International Classification of Functioning, Disability and Health: Children and Youth Version (ICF-CY) could facilitate the practical use of the ICF-CY in team evaluation. The purpose of this study was to derive an ICF-CY code set for infants under three years of age with early delay and disabilities (EDD Code Set) for initial team evaluation.
Methods:
The EDD Code Set based on the ICF-CY was developed on the basis of a Delphi survey of international professionals experienced in implementing the ICF-CY and professionals in early intervention service system in Taiwan.
Results:
Twenty-five professionals completed the Delphi survey. A total of 82 ICF-CY second-level categories were identified for the EDD Code Set, including 28 categories from the domain Activities and Participation, 29 from body functions, 10 from body structures and 15 from environmental factors.
Conclusions:
The EDD Code Set of 82 ICF-CY categories could be useful in multidisciplinary team evaluations to describe functioning of infants younger than three years of age with DD, in a holistic manner. Future validation of the EDD Code Set and examination of its clinical utility are needed.
Implications For Rehabilitation:
The EDD Code Set with 82 essential ICF-CY categories could be useful in the initial team evaluation as a common language to describe functioning of infants less than three years of age with developmental delay/disabilities, with a more holistic view. The EDD Code Set including essential categories in activities and participation, body functions, body structures and environmental factors could be used to create a functional profile for each infant with special needs and to clarify the interaction of child and environment accounting for the child's functioning.
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