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Updated: Apr 24, 2026

Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care
Published on: February 16, 2011
The double helix: when the system fails the intertwined needs of caregiver and patient
1Suzanne Geffen Mintz (suzanne@suzannemintz.com) founded Family Caregiver Advocacy in 2013 in order to focus her efforts on improving care and quality of life for families living with multiple chronic conditions. Prior to that, she was cofounder and CEO of the National Family Caregivers Association (now Caregiver Action Network) for twenty years. Her most recent book is A Family Caregiver Speaks Up: "It Doesn't Have to Be This Hard."
Abstract:
When a family caregiver becomes injured, she learns the difficulties--and costs--of caring for herself and her chronically ill husband at the same time.
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