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Increasing patient engagement: patients' responses to viewing problem lists online
A Wright1, J Feblowitz1, F L Maloney2
1Division of General Internal Medicine, Brigham & Women's Hospital , Boston, MA ; Partners HealthCare , Boston, MA ; Harvard Medical School , Boston, MA.
Applied Clinical Informatics
|January 16, 2015
Summary
Patients found viewing their electronic problem lists useful, with many taking action like researching conditions or contacting providers. Some experienced negative emotions, highlighting a need for better patient support strategies.
Area of Science:
- Health Informatics
- Patient Engagement
- Digital Health
Background:
- Online personal health records (PHR) offer patients access to their health information.
- Electronic problem lists within PHRs are a key component of patient-facing health technology.
Purpose of the Study:
- To understand patient experiences, including opinions, emotions, and actions, after viewing their electronic problem list via a PHR.
Main Methods:
- An online survey was administered to patients who accessed their healthcare provider-maintained problem list in a web-based PHR for the first time.
- 3,649 patients completed the survey, achieving a 42.1% response rate.
Main Results:
- Over 90% found the problem list useful and intended to use it again.
- Nearly half identified missing problems; 56% took action, including online research (32.4%), contacting providers (18.3%), and behavior change (16.7%).
- While many felt happy (64.7%), significant numbers reported sadness (30.4%), worry (35.7%), or fear (23.8%); emotional responses correlated with taking action.
Conclusions:
- Patients perceive significant value in accessing their electronic problem lists and are motivated to act on the information.
- The viewing experience can evoke a range of emotions, necessitating further research into supportive strategies.
- Optimizing the presentation and support surrounding electronic problem lists is crucial for maximizing patient benefit and minimizing distress.
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