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Urinary incontinence in spina bifida: Initial instrument validation.

Katherine C Hubert1, Georgios Sideridis2, Rebecca Sherlock3

  • 1Department of Urology, Boston Children's Hospital, 300 Longwood Avenue, Boston, MA 02115, United States; Harvard Medical School, Boston Children's Hospital, 300 Longwood Avenue, Boston, MA 02115, United States.

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|April 5, 2015
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Summary

The Incontinence Symptom Index-Pediatric (ISI-P) is a reliable tool for assessing urinary incontinence (UI) symptom severity and impairment in adolescents with spina bifida (SB). This validated instrument aids in understanding the impact of UI in this population.

Keywords:
Differential item functioning (DIF)RaschSpina bifidaUrinary incontinence

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Area of Science:

  • Pediatric Urology
  • Clinical Psychology
  • Rehabilitation Medicine

Background:

  • Adolescents with spina bifida (SB) often experience neuropathic urinary incontinence (UI).
  • Accurate assessment of UI symptom severity and impairment is crucial for effective management in this population.
  • Existing assessment tools may require validation for specific pediatric cohorts.

Purpose of the Study:

  • To psychometrically assess the Incontinence Symptom Index-Pediatric (ISI-P) in adolescents with SB and UI.
  • To evaluate the validity and reliability of the ISI-P in this specific patient group.
  • To determine if the ISI-P accurately measures symptom severity and functional impairment.

Main Methods:

  • The ISI-P, an 11-item self-administered questionnaire, was used.
  • Participants included adolescents aged 11-17 with SB and UI, and a control group with nephrolithiasis.
  • Psychometric evaluation included internal consistency (Cronbach's alpha), test-retest reliability, and factor analysis.

Main Results:

  • The ISI-P demonstrated high internal consistency (Cronbach's alpha = 0.936 for severity, 0.792 for bother).
  • Factor analysis supported a two-factor model, indicating excellent fit indices (CFI = 0.969).
  • Category information analysis confirmed that each category provided unique measurement information.

Conclusions:

  • The Incontinence Symptom Index-Pediatric (ISI-P) exhibits desirable psychometric properties.
  • The ISI-P is a valid and reliable instrument for measuring UI symptom severity and impairment in adolescents with SB.
  • This validated tool can enhance clinical assessment and management of UI in pediatric SB patients.