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Family Involvement in Nursing Homes: Are Family Caregivers Getting What They Want?
R Colin Reid1, Neena L Chappell2
11 University of British Columbia Okanagan, Kelowna, Canada.
Summary
Optimal family caregiver involvement in dementia care varies. This study found that matching caregiver expectations with opportunities is key for person-centered nursing home care.
Area of Science:
- Gerontology
- Dementia Care Research
- Family Caregiver Support
Background:
- Person-centered care for nursing home residents with dementia necessitates family caregiver engagement.
- The optimal level and type of family involvement can differ significantly among individual caregivers.
Purpose of the Study:
- To compare the importance family caregivers place on various types of involvement with their perceived opportunities for involvement.
- To assess the congruence between caregiver expectations and actual involvement opportunities in dementia care settings.
Main Methods:
- A Canadian study involving 135 family caregivers of nursing home residents with dementia.
- Caregivers rated the importance of 20 types of involvement and their perceived opportunities for engagement.
- Family Involvement Congruence Scores were calculated based on caregiver importance ratings and perceived opportunities.
Main Results:
- Congruence scores varied significantly across different types of involvement.
- The degree to which caregivers considered their involvement important influenced congruence.
- Identified discrepancies between expected and actual involvement opportunities.
Conclusions:
- Family caregiver involvement in dementia care is not uniform and requires tailored approaches.
- Family Involvement Congruence Scores can be valuable tools for research and practice in nursing homes.
- Addressing caregiver expectations is crucial for enhancing person-centered dementia care.
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