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Home-Based Monitor for Gait and Activity Analysis
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The interactive web-based program MSmonitor for self-management and multidisciplinary care in multiple sclerosis:

Peter Joseph Jongen1, Ludovicus G Sinnige2, Björn M van Geel3

  • 1Department of Community and Occupational Medicine, University Medical Center Groningen, University Groningen, Groningen, the Netherlands ; MS4 Research Institute, Nijmegen, the Netherlands.

Patient Preference and Adherence
|December 31, 2015
PubMed
Summary

MSmonitor, a web-based tool, aids persons with multiple sclerosis (PwMS) in self-management and integrated care. Pilot data show repeated use of specific questionnaires and diaries improved quality of life and fatigue management.

Keywords:
caremultidisciplinarymultiple sclerosispatient-reported outcomeself-managementweb-based

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Area of Science:

  • Neurology
  • Digital Health
  • Patient Self-Management

Background:

  • Growing need for self-management tools for persons with multiple sclerosis (PwMS).
  • Integration of multidisciplinary health data is crucial for comprehensive MS care.
  • Development of MSmonitor, a patient-reported outcome-based web program (2009-2014).

Purpose of the Study:

  • Describe the MSmonitor concept and its program elements.
  • Analyze MSmonitor's role in self-managing fatigue.
  • Evaluate the impact of MSmonitor usage on health-related quality of life (HRQoL).

Main Methods:

  • Retrospective comparison of fatigue and HRQoL before and after MSmonitor usage.
  • Correlative analysis of usage frequency and fatigue change.
  • Description of MSmonitor's components: validated questionnaires, inventories, diaries, and functionalities.

Main Results:

  • MSmonitor includes six validated questionnaires, two inventories, two diaries, and functionalities like e-consult.
  • Currently used in 17 hospitals by 581 PwMS and 200+ healthcare professionals.
  • PwMS using LMSQoL and MFIS-5 questionnaires showed improved HRQoL (P<0.026).
  • Activities Diary usage correlated with fatigue improvement (r=0.292; P=0.028).

Conclusions:

  • MSmonitor facilitates self-management and integrated care for PwMS.
  • Repeated use of MFIS-5 and LMSQoL questionnaires is linked to increased HRQoL.
  • Repeated use of the Activities Diary may aid in fatigue self-management.