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Framework for enhancing clinical practice guidelines through continuous patient engagement.

Melissa J Armstrong1,2, Juan-David Rueda3, Gary S Gronseth4

  • 1Department of Neurology, University of Florida College of Medicine, Gainesville, FL, USA.

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Summary
This summary is machine-generated.

This study introduces a ten-step framework for continuous patient engagement in clinical practice guideline (CPG) development. The framework details methods for incorporating patient input throughout the CPG lifecycle, enhancing guideline quality and relevance.

Keywords:
decision-makingguideline adherenceguidelines as topicpatient participationpatient-centred care

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Area of Science:

  • Health Services Research
  • Patient-Centered Care
  • Clinical Practice Guideline Development

Background:

  • Patient engagement in clinical practice guideline (CPG) development is widely recommended for improving guideline quality.
  • Current approaches to patient engagement in CPG development are inconsistent across different organizations and methods.

Purpose of the Study:

  • To propose a comprehensive ten-step framework for systematically engaging patients throughout the CPG development process.
  • To outline specific steps and methods for achieving continuous patient involvement in CPGs.

Main Methods:

  • Development of a ten-step framework for patient engagement in CPGs.
  • Categorization of engagement steps at both the developer/committee and individual guideline project levels.
  • Identification of specific patient roles and contributions at each stage of guideline development.

Main Results:

  • The framework details ten distinct steps for patient engagement across the CPG lifecycle.
  • Patients can contribute at the developer level (topic nomination, prioritization, group selection) and project level (question framing, research planning, systematic review, recommendations, dissemination).
  • Patient engagement can also occur at the developer level for guideline updates and evaluation of engagement processes.

Conclusions:

  • The proposed framework offers a structured model for continuous patient engagement in CPG development.
  • It serves as a valuable resource for guideline developers aiming to enhance patient involvement.
  • The framework can guide researchers investigating patient engagement methodologies within the CPG lifecycle.