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Improving Communication About Serious Illness in Primary Care: A Review
Joshua R Lakin1, Susan D Block2, J Andrew Billings3
1Department of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute, Boston, Massachusetts2Division of Palliative Medicine, Brigham and Women's Hospital, Boston, Massachusetts3Ariadne Labs, Brigham and Women's Hospital, and Harvard T.H. Chan School of Public Health, Boston, Massachusetts4Department of Medicine, Brigham and Women's Hospital, Boston, Massachusetts.
Primary care clinicians face barriers to discussing serious illness care preferences. Addressing clinician and system failures is crucial for improving patient-centered communication and care outcomes.
Area of Science:
- Medical Communication
- Primary Care Medicine
- Serious Illness Care
Background:
- Systematic improvements are needed in clinician-led discussions about goals and care preferences for patients with serious illnesses.
- Such conversations are linked to better patient outcomes, increased clinician satisfaction, and reduced healthcare costs.
- The specific role of primary care in initiating and managing these crucial discussions remains unclear.
Purpose of the Study:
- To review the evidence on communication strategies for serious illness within primary care settings.
- To identify barriers faced by clinicians and system-level failures impacting these conversations.
Main Methods:
- A structured literature search was conducted using MEDLINE via PubMed.
- 911 articles were identified, with 126 selected for review based on relevance.
- Bibliography searches were used to identify additional relevant titles.
Main Results:
- Key themes identified include ambiguity in role responsibility (primary care vs. specialists) for initiating conversations and the quality/quantity of discussions.
- Clinician barriers include deficits in knowledge, skills, attitudes, discomfort with prognostication, and uncertainty about timing.
- System failures in coordination, documentation, feedback, and quality improvement impede effective communication.
Conclusions:
- Clinician and system barriers pose significant challenges to providing adequate care for seriously ill patients in primary care.
- Improving communication requires enhanced training, validated patient selection tools, systematic processes for conversations, accessible documentation, and incentives for quality improvement.
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