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Adolescent Perspectives Following Ostomy Surgery: A Grounded Theory Study
Lynn D Mohr1, Rebekah J Hamilton
1Lynn D. Mohr, PhD, APN, PCNS-BC, CPN, Women Children and Family Nursing, Rush University College of Nursing, Chicago, Illinois. Rebekah J. Hamilton, PhD, RN, CNL, FAAN, Women Children and Family Nursing, Rush University College of Nursing, Chicago, Illinois.
Adolescents aged 13-18 with an ostomy focus on normalizing their physical and social selves. Healthcare providers can support this process by discussing care, school, family, and spirituality.
Area of Science:
- Pediatric Psychology
- Adolescent Health
- Qualitative Research
Background:
- Adolescent ostomy experience is complex.
- Understanding adolescent psychosocial adjustment is crucial.
Purpose of the Study:
- To provide a theoretical account of how adolescents (13-18 years) process the experience of having an ostomy.
- To identify key concepts influencing adolescent adjustment to ostomy.
Main Methods:
- Qualitative study employing grounded theory.
- 12 adolescents (13-18 years) participated in audio-recorded interviews.
- Constant comparative method and Dedoose software used for data analysis.
Main Results:
- Adolescents' ostomy processing involves "physical self" (changing reality, learning, adapting) and "social self" (reentering, disclosing).
- The overarching goal for adolescents is "normalizing" their experience.
- Themes highlight the integration of physical and social aspects of self.
Conclusions:
- Adolescents strive to normalize their lives post-ostomy.
- Healthcare providers can support adolescents by addressing physical, social, and spiritual concerns.
- Further research needed on parental adjustment and spirituality's role in coping.
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