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Technology-dependent children and the demand for pharmaceutical care
Aline Cristiane Cavicchioli Okido1, Suelen Teles da Cunha2, Eliane Tatsch Neves3
1Universidade de São Paulo, Escola de Enfermagem de Ribeirão Preto, Departamento de Enfermagem Materno Infantil e Saúde Pública. Ribeirão Preto-SP, Brasil.
Objective:
to understand the experience of mothers of technology-dependent children as regards pharmaceutical care.
Method:
this was a qualitative, descriptive-exploratory study developed based on open interviews using a structured characterization tool, and applied during home visits to 12 mothers caring for technology-dependent children. The data was submitted to inductive content analysis.
Results:
this study is split into two themes: (i) maternal overload during pharmaceutical care, demonstrating the need to administer drugs continuously and the repercussions of this exhaustive care on the caregivers; (ii) the ease or difficulty of access to the medicines required, showing informal strategies and support networks.
Conclusion:
pharmaceutical care is a daily challenge expressed in maternal overload and difficulty accessing the drugs, made worse by failures in the care network and coordinated care.
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