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Danish Palliative Care Database.

Mogens Groenvold1, Mathilde Adsersen2, Maiken Bang Hansen2

  • 1The Danish Palliative Care Database (DPD) Secretariat, Research Unit, Department of Palliative Medicine, Bispebjerg Hospital; Department of Public Health, University of Copenhagen, Copenhagen, Denmark.

Clinical Epidemiology
|November 9, 2016
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Summary
This summary is machine-generated.

The Danish Palliative Care Database (DPD) monitors specialized palliative care (SPC) quality using comprehensive data. It demonstrates high completeness for cancer patients, aiding quality improvement initiatives.

Keywords:
EORTC QLQ-C15-PALcancermultidisciplinary conferencepatient-reported outcomesquality indicatorspecialized palliative care

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Area of Science:

  • Oncology
  • Public Health
  • Health Services Research

Background:

  • Specialized palliative care (SPC) is crucial for improving patient quality of life.
  • Monitoring and evaluating SPC services are essential for clinical quality improvement.
  • The Danish Palliative Care Database (DPD) was established to systematically collect data on SPC.

Approach:

  • The DPD collects data on all patients referred to SPC in Denmark from January 1, 2010.
  • Key variables include referral details, SPC contact type, clinical and sociodemographic factors, multidisciplinary conferences, and patient-reported quality of life using the EORTC QLQ-C15-PAL.
  • The database supports the estimation of five quality of care indicators.

Key Points:

  • In 2014, 100% of 9,434 referred cancer patients were registered in the DPD.
  • Over 41,000 unique cancer patients were registered between 2010-2014.
  • The DPD includes clinically relevant variables and demonstrates high data and patient completeness.

Conclusions:

  • The Danish Palliative Care Database (DPD) is a valuable national resource for monitoring and improving specialized palliative care.
  • The database's comprehensive data and high completeness facilitate robust quality assessment.
  • DPD findings support evidence-based strategies for enhancing palliative care delivery in Denmark.