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Respite Care for Families of Children with Disabilities: A University/Faith Community Model
Amy Bigham1, Jill Cunningham, Kristen Johnston
1Amy Bigham, DNP, RN, FNP-BC, is an associate professor at the Ida V. Moffett School of Nursing, Samford University, Birmingham, Alabama, and a practicing family nurse practitioner. Amy has been an active participant in the respite care program since its inception. Jill Cunningham, DNP, RN, FNP-BC, is an associate professor and department chair at the Ida V. Moffett School of Nursing. Jill has many years of experience with patients with developmental disabilities. She is the founder and director of the respite care program. Kristen Johnston, DNP, RN, FNP-BC, is an assistant professor at the Ida V. Moffett School of Nursing. Her doctoral work addressed parental stress and respite care.
Abstract:
Families of children with disabilities or special healthcare needs report respite care as a great need, yet availability of such care is scarce. A partnership developed between a nursing school in the Southeast and a faith community, to provide respite care and summer camps, resulted in a win-win situation for families, children, interprofessional students and educators, the faith community, and volunteers. This article explains the need for respite, how schools of nursing and faith communities can partner, and the benefits to all stakeholders.
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