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Patient-Centered Personal Health Record and Portal Implementation Toolkit for Ambulatory Clinics: A Feasibility Study
Eun-Shim Nahm1, Catherine Diblasi, Eva Gonzales
1Author Affiliations: University of Maryland School of Nursing (Drs Nahm and Zhu and Mss Sagherian and Kongs); University of Maryland Medical Center (Mss Diblasi and Gonzales); University of Maryland School of Medicine (Dr Silver), Baltimore.
Computers, Informatics, Nursing : CIN
|December 29, 2016
Summary
A new toolkit improved patient-provider communication in a pilot study for personal health records (PHR) and patient portals. This approach shows promise for increasing patient engagement with digital health tools.
Area of Science:
- Health Informatics
- Digital Health
- Patient Engagement
Background:
- Personal health records (PHR) and patient portals are crucial for chronic disease management but face low adoption rates.
- A significant gap exists in patient support during the implementation of these digital health tools.
- Existing implementation strategies often lack comprehensive patient-centered resources.
Purpose of the Study:
- To assess the preliminary impact of the Patient-Centered Personal Health Record and Patient Portal Implementation Toolkit on patient knowledge, self-efficacy, communication, and adherence.
- To evaluate the effectiveness of a toolkit designed to support the implementation of PHRs and patient portals.
- To address the critical gap in patient support within digital health tool adoption processes.
Main Methods:
- Implementation of the Patient-Centered Personal Health Record and Patient Portal Implementation Toolkit in a diabetes/endocrinology center.
- A randomized controlled trial of the "MyHealthPortal" (4-week online program) with 74 patients.
- Data collection at baseline, 4 weeks, and 12 weeks, focusing on knowledge, self-efficacy, patient-provider communication, and treatment adherence.
Main Results:
- The intervention group demonstrated a significant improvement in patient-provider communication at 4 weeks (P = .004).
- Trends indicated greater improvement in other variables for the intervention group, though not statistically significant.
- The toolkit showed preliminary potential in enhancing the PHR and patient portal implementation process.
Conclusions:
- The Patient-Centered Personal Health Record and Patient Portal Implementation Toolkit shows promise in addressing implementation gaps for digital health tools.
- Further research with larger, diverse samples is necessary to confirm generalizability.
- The toolkit may enhance patient engagement and support in managing chronic illnesses through digital platforms.
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