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Version 1.1 of the international spinal cord injury skin and thermoregulation function basic data set
F Biering-Sørensen1, M S Alexander2,3,4, F W A van Asbeck5,6
1Clinic for Spinal Cord Injuries, Rigshospitalet, University of Copenhagen, Copenhagen, Denmark.
Spinal Cord
|January 18, 2017
Summary
The international spinal cord injury (SCI) skin and thermoregulation data set was updated in version 1.1. Key changes include revised measurement terminology for skin breakdown, improving SCI data collection and research.
Area of Science:
- Spinal Cord Injury Research
- Clinical Data Standards
- Rehabilitation Medicine
Background:
- The international spinal cord injury (SCI) skin and thermoregulation function basic data set (version 1.0) required updates for clarity and practicality.
- Standardized data collection is crucial for SCI research and clinical practice.
Purpose of the Study:
- To detail the revisions implemented in version 1.1 of the international SCI skin and thermoregulation function basic data set.
- To enhance the accuracy and usability of SCI-related skin and thermoregulation data.
Main Methods:
- An international working group convened to review and discuss proposed modifications to the existing data set.
- Feedback was solicited from key SCI organizations (ISCoS, ASIA), national societies, and the public via websites.
Main Results:
- Measurement terms were refined: 'largest diameter, including undermining' became 'Largest undermining' with added measurement guidance.
- 'Smallest opening diameter' was renamed 'Width' for clarity.
- Terminology shifted from 'grades'/'stages' to 'categories' to align with current literature.
Conclusions:
- Version 1.1 incorporates adjusted, more practicable measurements and updated terminology for SCI skin and thermoregulation data.
- The revised data set aims to improve data consistency and facilitate better SCI research outcomes.
- Full details and the updated data set are available on the ISCoS website.
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