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The Complexities of "Struggling to Live Life"
Samereh Abdoli1, Lynda R Hardy1, Joanne Hall1
1College of Nursing, University of Tennessee, Knoxville, Tennessee (Dr Abdoli, Prof Hardy, Prof Hall).
The Diabetes Educator
|March 26, 2017
Summary
Young adults in Appalachia with type 1 diabetes mellitus (T1DM) face unique challenges, including social stigma and limited healthcare access. Addressing these disparities requires targeted empowerment programs and policy support for improved quality of life.
Area of Science:
- Endocrinology
- Public Health
- Sociology
Background:
- Young adults with type 1 diabetes mellitus (T1DM) in Appalachia experience unique health vulnerabilities.
- Transitioning to adulthood with T1DM presents distinct challenges in underserved regions.
Purpose of the Study:
- To explore and describe the perceptions and lived experiences of young adults with T1DM in Appalachia, Tennessee.
- To identify salient concerns related to daily T1DM management from the perspective of this population.
Main Methods:
- Qualitative descriptive analysis of in-depth interviews with 9 young adults (ages 18-30) residing in Appalachian Tennessee.
- Data analysis involved iterative review using NVivo 11 Pro, encompassing immersion, reduction, and interpretation phases.
Main Results:
- Key themes identified include the struggle toward adulthood, daily diabetes management challenges, a strong desire for life, supportive environments, identity development influenced by diabetes, and the disruptive nature of T1DM demands.
- Participants highlighted both benefits and drawbacks of technological advancements in diabetes care.
- Common experiences with T1DM were observed among young Appalachian adults.
Conclusions:
- Young adults with T1DM in Appalachian Tennessee face compounded health vulnerabilities, including social stigma, limited T1DM knowledge, and inadequate healthcare access compared to pediatric care.
- Fears regarding pregnancy, diabetes complications, and hypoglycemia are prevalent.
- There is a critical need for individual and community-based empowerment programs, insurance reimbursement, and policy reinforcement to mitigate health disparities and enhance quality of life for this underserved group.
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