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Experience of Being Young With Psoriasis: Self-Management Support Needs
Gitte Susanne Rasmussen1,2, Knud Kragballe1, Helle Terkildsen Maindal2,3
11 Aarhus University Hospital, Aarhus, Denmark.
Qualitative Health Research
|December 2, 2017
Summary
Adolescents with psoriasis experience loneliness and self-imposed limitations, needing tailored support for condition, role, and emotional management. Early interventions involving parents and professionals are crucial for improving young people's quality of life.
Area of Science:
- Dermatology
- Psychology
- Adolescent Health
Background:
- Psoriasis significantly impacts adolescents' appearance and functioning.
- Self-management needs in adolescents with psoriasis are under-researched.
- The condition can lead to cumulative life course impairment.
Purpose of the Study:
- To explore the lived experiences of adolescents with psoriasis.
- To identify challenges faced by young people with psoriasis.
- To determine the support required for effective self-management.
Main Methods:
- Interpretive description methodology.
- Focus groups and individual interviews with adolescents.
- Qualitative data analysis to understand experiences.
Main Results:
- Adolescents report loneliness and self-imposed limitations.
- Lack of personalized knowledge and communication skills hinders management.
- Challenges include managing the disease's impact and societal reactions.
Conclusions:
- Adolescents need early, tailored interventions for condition, role, and emotional management.
- Interventions should involve parent education, peer support, and professional guidance.
- Further research should co-develop and evaluate interventions with young people, parents, and professionals.
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