Patient-Reported Measures for Person-Centered Coordinated Care: A Comparative Domain Map and Web-Based Compendium for...

Area of Science:

• Health Services Research
• Patient-Reported Outcomes
• Health Informatics

Background:

• Patient-reported measure (PRM) questionnaires, initially for research, now measure diverse health constructs like quality of life and care experiences.
• Current health policy promotes PRMs for service redesign, particularly in person-centered coordinated care (P3C), to integrate patient perspectives.
• Effective use of PRMs can enhance care delivery through system-level feedback for management and commissioning, requiring adequate support and guidance.

Purpose of the Study:

• To develop evidence-based guidance and support for utilizing P3C-PRMs within health and social care policy.
• To identify PRMs suitable for enhancing P3C development.
• To map P3C-PRMs against a theoretical P3C model and organize findings in a user-friendly web-based database.

Main Methods:

• A pragmatic, systematic approach was employed to identify candidate P3C-PRMs, balancing comprehensiveness and feasibility.
• Resources included existing compendiums, literature searches (peer-reviewed and gray), and stakeholder engagement.
• A subset of eligible PRMs was mapped against the P3C theoretical model to classify measured constructs and generate shortlists.

Main Results:

• A web-based database was populated with 328 identified P3C-PRMs, with 63 meeting eligibility criteria for shortlisting.
• PRMs were classified by measurement constructs and mapped against the P3C model, identifying tools with strong P3C coverage and content validity.
• Transitions and medication management were identified as areas with limited current PRM coverage.

Conclusions:

• A comprehensive compendium of P3C-PRMs was created using a pragmatic, systematic approach with stakeholder input.
• The developed user-friendly web-based portal serves as a central resource for PRMs relevant to P3C.
• This resource is valuable for healthcare commissioners, managers, and researchers seeking to improve care through patient-reported measures.