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Support following total laryngectomy: Exploring the concept from different perspectives.

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  • 1College of Nursing and Health Sciences, Flinders University South Australia, Adelaide, SA, Australia.

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|April 20, 2018
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Summary

Total laryngectomy (TL) adjustment requires extensive support. This study found that optimal support for individuals with a TL involves competence and resilience, built through trust and shared care among patients, families, and healthcare professionals.

Keywords:
laryngeal cancerlaryngectomypatient educationpatient satisfactionquality of lifesupportive care

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Area of Science:

  • Oncology
  • Rehabilitation Medicine
  • Qualitative Health Research

Background:

  • Adjustment after total laryngectomy (TL) is complex, with extensive support needs.
  • Current quality of life measures often lack patient perspectives post-surgery.
  • Understanding diverse viewpoints is crucial for improving post-TL care.

Purpose of the Study:

  • To explore the multifaceted support needs of individuals with a laryngectomy (IWL).
  • To examine the perspectives of IWL, significant others (SO), and health professionals (HP) on post-TL adjustment.
  • To identify key factors influencing care, safety, and dignity for IWL.

Main Methods:

  • Qualitative study involving 28 participants (IWL, SO, HP).
  • Data collected via in-depth, semi-structured interviews.
  • Analysis using constructivist grounded theory and symbolic interactionism.

Main Results:

  • "Being supported to develop competence and resilience" emerged as a multidimensional, nonlinear construct.
  • Key interactive processes include "perceiving influencing factors," "building trusting relationships," and "sharing and balancing the care."
  • The care triad (IWL, SO, HP) significantly influences care, safety, and dignity; competence among all stakeholders optimizes support.

Conclusions:

  • Effective support post-total laryngectomy hinges on a collaborative "care triad" approach.
  • Building competence and resilience requires trust and shared care responsibilities.
  • Ensuring all triad members are competent in care delivery is vital to prevent increased burden and optimize patient outcomes.