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[Health related quality of life in pediatric patients with inflammatory bowel disease]
Claudia Ojeda Z1, Colomba Cofré D2
1Pontificia Universidad Católica de Chile, Chile.
Insights
Pediatric patients with Inflammatory Bowel Disease (IBD) often experience reduced health-related quality of life (HRQL). This study highlights the need for routine HRQL screening in these young individuals to guide interventions.
Area of Science:
- Pediatric Gastroenterology
- Clinical Research
- Quality of Life Studies
Background:
- Inflammatory Bowel Disease (IBD) significantly impacts pediatric patients' quality of life.
- Chronic IBD management requires a comprehensive approach beyond clinical symptoms.
Purpose of the Study:
- To assess the health-related quality of life (HRQL) in pediatric patients diagnosed with IBD.
- To establish a baseline understanding of HRQL in this population for future interventions.
Main Methods:
- Multicenter, cross-sectional descriptive study involving 30 pediatric IBD patients (ages 8-18).
- Utilized the IMPACT III questionnaire and a sociodemographic survey.
- Data collected between September 2015 and January 2017.
Main Results:
- The average HRQL score was 129.5, with no significant differences across IMPACT III sections.
- Ulcerative Colitis (UC) was diagnosed in 80% of patients.
- No correlation found between HRQL and disease duration, gender, or number of flares.
Conclusions:
- This study provides initial insights into HRQL for pediatric IBD patients in Chile.
- Routine HRQL measurement is recommended as a screening tool for early identification of impaired quality of life.
- Identifying lower HRQL is crucial for developing targeted interventions in pediatric IBD care.
Introduction:
Inflammatory bowel disease (IBD) is a group of chronic pathologies that have impli cations in several factors that affect the quality of life in pediatric patients.
Objectives:
To describe the health related quality of life (HRQL) in pediatric patients with IBD.
Patients And Methods:
A Multicenter cross-sectional descriptive study was conducted. Patients aged between 8-18 and with IBD diagnosis were included; IMPACT III quality of life questionnaire and a sociodemographic questionnaire were applied between September 2015 and January 2017.
Results:
A total of 30 pa tients were recruited, 60% male, with an average age of 13.6 years. 80% of patients were diagnosed with Ulcerative Colitis (UC). The predominant pharmacological treatment was combined therapy in 63.3%, being the most frequent aminosalicylates and immunomodulator. The IMPACT III quality of life score had an average of 129,5 points and when analyzing by section, there was no statistically significant difference between the averages. In our sample, there was no correlation between HRQoL and the number of flares, disease duration gender.
Conclusions:
This is a first approach to the study of HRQoL in pediatric patients in Chile. Since HRQoL is an important aspect to be explored in the routine evaluation of IBD patients, the identification of a lower HRQoL is the first step to perform interventions in these patients, thus we recommend performing this measurement as a screening method in all of them.
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