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Self-help support groups are voluntary, community-based organizations that provide a platform for individuals with shared concerns to exchange support, insights, and practical strategies for coping with life challenges. Typically led by group members or paraprofessionals, these groups form a cornerstone of mental health care, especially in reaching populations that are underserved by traditional healthcare systems.
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Detecting Changes in Support Needs Over Time.

Karrie A Shogren1, James R Thompson1, Leslie A Shaw1

  • 1Karrie A. Shogren, James R. Thompson, Leslie A. Shaw, Elizabeth M. Grandfield, and Mayumi Hagiwara, University of Kansas.

American Journal on Intellectual and Developmental Disabilities
|June 28, 2018
PubMed
Summary
This summary is machine-generated.

Support needs scores for adults with intellectual and developmental disabilities (IDD) remain stable over one to three years. The Supports Intensity Scale-Adult (SIS-A) and its Annual Review Protocol (ARP) effectively track changes in life activities and needs.

Keywords:
Supports Intensity Scaleintellectual and developmental disabilitiessupport needs

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Area of Science:

  • Disability Studies
  • Psychometrics
  • Developmental Psychology

Background:

  • Assessing support needs is crucial for individuals with intellectual and developmental disabilities (IDD).
  • Limited research exists on the longitudinal stability of support needs scores in this population.
  • The Supports Intensity Scale-Adult (SIS-A) is a key tool for evaluating support requirements.

Purpose of the Study:

  • To investigate the stability of support needs scores over time in adults with IDD.
  • To evaluate the utility of the SIS-A Annual Review Protocol (ARP) in identifying changes.
  • To inform future research and clinical practices regarding support needs assessment.

Main Methods:

  • Analysis of data from 82 adults with IDD reassessed using the SIS-A and SIS-A ARP.
  • Statistical examination of score stability over a one- to three-year period.
  • Assessment of the discriminative power of specific SIS-A ARP sections.

Main Results:

  • SIS-A scores demonstrated stability over a one- to three-year interval for adults with IDD.
  • The SIS-A ARP showed significant discriminative power, particularly for changes in life activities, medical, and behavioral needs.
  • Findings suggest the reliability of repeated SIS-A assessments in this population.

Conclusions:

  • Support needs, as measured by the SIS-A, are generally stable in adults with IDD over moderate timeframes.
  • The SIS-A ARP can effectively identify meaningful changes in individuals' lives and needs.
  • Results support the use of the SIS-A for tracking support needs and informing service planning for adults with IDD.